ASXL Rare Research Endowment Foundation logo

ASXL Rare Research Endowment Foundation

The ASXL Rare Research Endowment (ARRE) Foundation is a family-led patient advocacy organization focused on advancing knowledge and understanding of ASXL-related disorders (Bohring-Opitz Syndrome, Shashi-Pena Syndrome, and Bainbridge-Ropers Syndrome) with the goal of developing effective therapies and medical interventions. We are raising funds for research, building the network of clinicians and scientists who are studying the ASXL gene family and their associated disorders, developing resources for clinicians and parents to improve clinical outcomes, and facilitating collaborations among health professionals who have experience treating ASXL syndromes.

Organization

EIN 82-3890665
CategoryH
Medical Specialty Research
Address
P.O. Box 4662
Portland, ME 04112
United States of AmericaGoogle Maps
Total Revenue 
$228.52k
Total Expenses 
$224.60k
Net Income 
$3.92k
Total Assets 
$614.25k
Total Liabilities 
$1.36k
Net Assets 
$612.89k
Program Expense 
71.77%
Administrative Expense 
13.2%
Fundraising Expense 
15.03%
Working Capital 
2.73 yrs

Data from 2022 via Guidestar

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