RSRT's mission is to spur and support research that is leading to a cure for Rett Syndrome and related MECP2 disorders. Rett is a devastating disorder that afflicts 350,000 children and adults around the world. It robs its victims of speech, movement, and hand use and often causes seizures, breathing abnormalities, extreme anxiety, digestive and cardiac problems. Rett is caused by a random mutation on the X chromosome and it afflicts mostly girls and women. In 2020 RSRT launched a new phase of its research called CURE 360. The name reflects the fact that RSRT has Rett surrounded with the most promising approaches that attack the disorder at its genetic core. CURE 360 also ensures that the research incubated at RSRT moves into biopharma, a critical step for advancing to clinical trials.
Organization Details
EIN 26-0687439
Category
Voluntary Health Associations & Medical Disciplines
